Met Achromtic Leukodystrophy (MLD) is a neurochemical disease which gradually causes the myelin sheath that coats the brain to degenerate. Life expectancy after diagnosis is three to five years. Not only is there no cure, and little or no research, there is also no treatment known or offered by conventional medicine.
In other words, when a person is afflicted with MLD, conventional medicine has nothing to offer about it. However, OHIP will not pay for any alternatives; in addition, there is no financial assistance given to the family by OHIP for coping with a person with MLD if that family is seeking help in the fields of alternative medicine.
So, the family have a choice: staying with the conventional medical care — which amounts literally to nothing up to palliative care while receiving some benefits from the system in the way of financial assistance — or looking for alternatives which might in some way retard the progress of the disease or even reverse it, while getting no financial help from OHIP. To read the rest of the article: http://www.citizen.on.ca/news/2009/0827/local_news/037.html